Big Little JC Association
I was born on September 1, 2010 at Children’s Memorial Hermann Hospital in Houston TX, with a syndrome called “ACAMPOMELIC CAMPOMELIC DYSPLASIA”, a type of Skeletal Dysplasia.
My doctors found a severe Tracheobronchomalacia, a condition that occurs when the airways collapse during breathing or coughing and that’s why they decided to get me a tracheostomy which helps me to breathe, plus a G- tube in order to be fed properly. I’m with a ventilator 24 hours a day!!!
Big Little JC Association is a Non- Profit organization with the mission to:
· Educate parents or caregivers of Medically Dependent Children through its website, published articles, workshops, conferences, trainings parents to parents and
· Advocate before legislative and regulatory bodies on behalf of Medically Dependent Children and their families and in support of cohesive statewide policies.
· Provide funds to supplement the existing medical coverage of their special health care needs and the necessary emotional support to attain their maximum
· Create collaboration alliances with corporations and organizations focused on improving the quality of life for such children and their families.
For more information about the Big Little JC Association, please visit our website: www.biglittlejc.org